For most kids, starting school is a big big deal. But for Hugo, it was even more meaningful: it meant he was healthy. After being diagnosed with acute lymphoblastic leukemia at age 2, Hugo had persevered through a devastating health challenge. Kindergarten marked the start of a new, cancer-free journey—or so his family thought.
Halfway through the school year, Hugo had to pull out of kindergarten. His cancer had relapsed. He missed the rest of the school year and within four months, his family's worst nightmare was confirmed: standard cancer treatments just weren't working.
Despite the setback, Hugo's care team at BC Children's Hospital hadn't given up hope. Oncologist Dr. Jacob Rozmus was able to get him access to a donor-supported treatment called chimeric antigen receptor T-cell therapy, or CAR T-cell therapy.
This highly personalized treatment involves taking a child's own T-cells and reengineering them to fight the cancer cells attacking their body. For Hugo, CAR T-cell therapy was a last ray of hope. If it didn't work, there would be no path forward. But it did work: 11 days after receiving his new T-cells, Hugo's cancer cell count dropped to zero.
His family was overwhelmed with relief. With his cancer cell count finally in check, Hugo qualified for a life-changing bone marrow transplant. His older brother and best friend, Kai, would be the donor. "Kai was ready to help make Hugo healthy, so he could get back on the playground," said Hugo's dad, Abe.
It's been almost a year since Hugo's transplant. This September, he's starting grade three. He's thriving in school, and loves playing soccer. But he's also gotten into field hockey, acoustic guitar and chess. Because now, thanks to donor-supported advancements in the field of childhood cancer, Hugo is healthy enough to try, and be, anything he wants.
BC children are diagnosed with cancer each year
of kids with cancer still don't make it – that's 1 in 5 kids
of kids who survive suffer long-term side effects